Sunday, April 20, 2014

Happy Easter!

We kicked off our Easter celebrations with a Easter egg hunt with our Down syndrome group.  
Aunt Molly and Pat were in town and got to join in the fun!









Um, how cute are these!?  Wyatt and I made these to bring to a friend's house for an egg decorating party.  
Not gonna lie; I am pretty proud of them!







Easter Morning Egg Hunt at our house











Celebrating Easter at Grandma & Papa Turpen's house
















Friday, March 21, 2014

Kindergarten Round Up


Can you believe Wyatt will be a Kindergartener in a few months!?  Me neither!  He loved Kindergarten round up and had fun checking out the rooms, meeting the teachers, and was a social butterfly with the other students!  This boy is READY....his mama is another story!

World Down Syndrome Day!

Okay, so I realize I am WAAAYYYY behind but I am just going to carry on like I am not.  These next few posts will probably be short and sweet or they will NEVER happen!

March 21st is World Down Syndrome Day.  3/21 is significant because people with Down syndrome are born with 3 copies of their 21st chromosome.

We had a fun, FULL day and rocked our Down syndrome awareness shirts all day.



Clay had his annual cardiology appointment at Children's Hospital and everything check out great!  Clay sat through the 30 minute echocardiogram like a champ and his doctor, Dr. Danford, was very pleased with the way everything looks.  We don't go back for 18 months!


Clay's shirt says "Ha ha!  I have an extra chromosome!"




Later in the day, I ran 3.21 miles to raise money for an organization called Research Down Syndrome - more about that in a later post!



Wyatt and Hazel helped me make these 321 cookies for (3/21).  They might not understand Down syndrome but they understand cookies!!!!


I brought the cookies that my little people didn't eat to a get together with my Down syndrome mom's group later that night.  We watched Monica & David, a documentary on a married couple with Down syndrome.  I would highly recommend it to anyone!  I believe you can find it on Netflix.

We had a great day celebrating Clay and all those rockin' that extra chromosome! 




Wednesday, March 5, 2014

Spread the Word to End the Word

Today is the annual day to raise awareness for ending of the use of the words retard and retarded in people's derogatory language.  

You can read more about the campaign and take your pledge today at http://www.r-word.org/.

This is a great article by actor John McGinley, who has a son with Down syndrome.  If you don't have time to read it, this about sums it up "Words hurt.  They do.  They always have.  And they always will."



Wednesday, February 26, 2014

Wyatt is a Five Year Old Boy!

FIVE!!!!!....how can that even be true!?  This moment seems like it was just yesterday. 


Wyatt's birthday has been a big deal coming.  He is very into numbers and age lately.  

Wyatt was thrilled when he turned 4.5 and was no longer "just 4".  
He reads the size tags on his clothes and several questions followed if he was not wearing "4 year old clothes"....he is very excited to wear clothes "for a five year old boy!"  
Wyatt is also very concerned for Clay's safety and alerts us of ALL the toys we have that say for ages 3+.  Clearly he thinks we are dropping the ball on this one.  
One thing he is not looking forward to is eating 5 bites of an unwanted food, instead of just 4 bites.  

Well, there was no need to worry about unwanted food on his birthday!  Milk with a sprinkle rim, donuts, cake - bring it on!




I was lucky enough to eat breakfast at Wyatt's school with him.  This is his "friend" Johanna.  
We hear A LOT about her ;) 


Our attempt at a family photo before heading out the door to a birthday dinner at Big Fred's with Grandma Nancy, Aunt Jill, and Aunt Esther!







Our cool dude wanted to have a party with his friends this year (how grown up is that!?!?!) so we invited his preschool class to Bounce U (a bounce house, party place).  
A good time was had by all!






















You know how we do it.  
One birthday celebration?  
Nope.  
Two birthday celebrations?  
Nope.  
Three birthday celebrations!?  
Why not!?!?! 

Grandma Sue and Papa Jim came down a few days before Wyatt's birthday to kick off the birthday parties.  We were all excited to spend the day with them!







Happy Birthday, Wyatt!  We love you all the way to Africa, then to the moon, and back!







Thursday, February 6, 2014

Goodbye tonsils and adenoids!

On Tuesday, Hazel had an intracapsular tonsillectomy and her adenoids removed.  Our pediatrician has been concerned with the size of her tonsils for some time.  Their size combined with her snoring, sleep apnea, and trouble swallowing solid foods meant it was time for a visit to the ear, nose, and throat doctor.

We have been at Dr. Allen's office a lot lately with Clay's latest tube surgery so it was no biggie for Hazel.  She kept making comments about what a big girl she is and how she was doing such a good job and not crying.  She was right!

Dr. Allen also thought the tonsils needed to come out and was concerned with the amount of fluid in Hazel's ears (which led to failed hearing tests) and thought that tubes might be necessary.  She gave me the option of doing a partial (intracapsular) tonsillectomy, where they remove 90-95% of the tonsils leaving only a small amount of tissue along the wall of the throat.  This usually makes for a MUCH easier recovery, less pain, and less chance of bleeding.  Because Hazel does not have a history of sore throats and size being her only issue with her tonsils, it seemed like a great option.  In most cases where tonsils need to be removed, the adenoids also need to come out and that was true for Hazel as well.

The day of surgery, Hazel made a grand entrance at Boys Town wheeling her bee suitcase filled with her toys and blanket.  Seriously, all the nurses came out to admire her.  She was in heaven.

The hospital issue pajamas were a big hit.  She was as excited about them as she would have been about a shimmery princess dress.  Bless her heart!


Daddy came to join us after he dropped Wyatt and Clay off at school and Hazel was super excited for some Daddy snuggles.  She didn't know what was about to happen but she knew something was up!


When the anesthesiologist came to get Hazel, she was so brave.  No tears.   She just waved goodbye as they pushed her down the hall.  Seriously, I cried and she did not.  One tough cookie.  

Dr. Allen came in about 45 minutes later and said that everything went great.  Her adenoids looked worse than her tonsils so she thinks they were responsible for the fluid in her ears and did not put tubes in (yay!).

The nurse brought Hazel back to us, from recovery, about an hour after that.  She was pretty out of it but was not upset.  Within an hour or so, she was talking, drinking juice, and loving ALL the jello!




We were able to go home about 4 hours after Hazel got out of recovery.  She was a little bummed to leave.  Snuggles, no siblings, cartoons, all the jello a girl could want - of course she didn't want to leave!


We are now 3 days out from surgery and Hazel is recovering like a champ!  She is staying hydrated with lots of water and juice, sleeping well, and does not seem to be in any pain.  Her throat is dry/sore when she first wakes up but after a dose of Tylenol and getting some fluids in her, she is good to go.

We are so proud of our big girl and are hopeful for better eating and sleeping habits to come!