tag:blogger.com,1999:blog-37774880372557194542024-03-04T23:12:05.918-06:00The Janke JoysAnonymoushttp://www.blogger.com/profile/13889690849796455636noreply@blogger.comBlogger235125tag:blogger.com,1999:blog-3777488037255719454.post-17526936340134239672014-09-09T20:44:00.000-05:002014-09-09T20:44:27.670-05:00Buddy Walk time!<div class="separator" style="clear: both; text-align: left;">
<span style="background-color: #f1c232;"><span style="color: #141823; font-family: Helvetica, Arial, 'lucida grande', tahoma, verdana, arial, sans-serif; font-size: 14.3999996185303px; line-height: 14.3360004425049px;">It is that time of year again! The </span><a data-hovercard="/ajax/hovercard/page.php?id=468309633306239" href="https://www.facebook.com/omahabuddywalk" style="color: #3b5998; cursor: pointer; font-family: Helvetica, Arial, 'lucida grande', tahoma, verdana, arial, sans-serif; font-size: 14.3999996185303px; line-height: 14.3360004425049px; text-decoration: none;">Omaha Buddy Walk</a><span style="color: #141823; font-family: Helvetica, Arial, 'lucida grande', tahoma, verdana, arial, sans-serif; font-size: 14.3999996185303px; line-height: 14.3360004425049px;"> is less than a month away!</span></span></div>
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<span style="background-color: #f1c232;"><br style="color: #141823; font-family: Helvetica, Arial, 'lucida grande', tahoma, verdana, arial, sans-serif; font-size: 14.3999996185303px; line-height: 14.3360004425049px;" /><span style="color: #141823; font-family: Helvetica, Arial, 'lucida grande', tahoma, verdana, arial, sans-serif; font-size: 14.3999996185303px; line-height: 14.3360004425049px;">Where - Stinson Park (Aksarben Village)</span><br style="color: #141823; font-family: Helvetica, Arial, 'lucida grande', tahoma, verdana, arial, sans-serif; font-size: 14.3999996185303px; line-height: 14.3360004425049px;" /><span style="color: #141823; font-family: Helvetica, Arial, 'lucida grande', tahoma, verdana, arial, sans-serif; font-size: 14.3999996185303px; line-height: 14.3360004425049px;">2285 S 67th St, Omaha, NE 68106</span><br style="color: #141823; font-family: Helvetica, Arial, 'lucida grande', tahoma, verdana, arial, sans-serif; font-size: 14.3999996185303px; line-height: 14.3360004425049px;" /><span style="color: #141823; font-family: Helvetica, Arial, 'lucida grande', tahoma, verdana, arial, sans-serif; font-size: 14.3999996185303px; line-height: 14.3360004425049px;">When - Saturday, October 4th 9AM - NOON</span><span class="text_exposed_show" style="color: #141823; display: inline; font-family: Helvetica, Arial, 'lucida grande', tahoma, verdana, arial, sans-serif; font-size: 14.3999996185303px; line-height: 14.3360004425049px;"><br /><br />The carnival begins at 9 with games, face painting, bounce houses, photo booths, music, and snacks! We will be taking a group picture prior to the walk so stay tuned for more details! The walk begins at 11.<br /><br />We have our fundraising page all set up and are hoping to be a top fundraising team for the third year in a row! All donations, big or small are greatly appreciated and tax deductible!<br />You can donate here - <a href="https://dsamidlandsorg.presencehost.net/teams/janke-clays-crew.html" rel="nofollow nofollow" style="color: #3b5998; cursor: pointer; text-decoration: none;" target="_blank">https://<wbr></wbr><span class="word_break" style="display: inline-block;"></span>dsamidlandsorg.presencehost<wbr></wbr><span class="word_break" style="display: inline-block;"></span>.net/teams/<wbr></wbr><span class="word_break" style="display: inline-block;"></span>janke-clays-crew.html</a><br /><br />Clay can't wait to have all his friends and family come out to support him again this year! Please join us October 4th at Stinson Park (Aksarben Village). We will be wearing our "Clay's Crew" shirts again this year. If you need to order one, please let Luke or Leah know by 9/14!<br /><br />If you do not want the "official" Omaha Buddy Walk shirt, you can pay just $5 when registering.<br /><br />Register for the walk here - <a href="https://www.facebook.com/l.php?u=https%3A%2F%2Fdsamidlandsorg.presencehost.net%2Fnews-events%2Fbuddy-walk.html&h=hAQGP799_&enc=AZOcoZ7-8wy0Tyu0oGCutjKkvL4zRCpBwJzGRqf-wcIhbePq-59qYQMUUjoXhZtpKBk&s=1" rel="nofollow nofollow" style="color: #3b5998; cursor: pointer; text-decoration: none;" target="_blank">https://<wbr></wbr><span class="word_break" style="display: inline-block;"></span>dsamidlandsorg.presencehost<wbr></wbr><span class="word_break" style="display: inline-block;"></span>.net/news-events/<wbr></wbr><span class="word_break" style="display: inline-block;"></span>buddy-walk.html</a><br /><br />Thank you so much for your support!<br /><br />Love, The Jankes</span></span></div>
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<br />Anonymoushttp://www.blogger.com/profile/13889690849796455636noreply@blogger.com0tag:blogger.com,1999:blog-3777488037255719454.post-80326172284422802822014-05-24T22:47:00.002-05:002014-05-24T22:47:31.245-05:00Weekly Phone Dump<div style="text-align: center;">
Doing a little outdoor exploring </div>
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What!? A little dirt never hurt anyone, right!?</div>
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Hazel found her future Prince Charming!</div>
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Last week, Hazel and Clay had preschool and Wyatt did not so we spent the morning at the zoo - just the two of us. We had a great time and we both had our first Skyfari experience!</div>
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Wyatt's last day of preschool!</div>
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Clay's new wheels! It is called a Smart Trike. He LOVES is and I love that he is strapped in! </div>
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Finding it at Big Wheels was even better - I didn't have to put it together!</div>
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Some paddle boat time with the "big kids"!</div>
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Clay loves to cruise around on his John Deere :)</div>
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It is toad and frog season and we are loving it!</div>
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A sneak peek of our family pics we took last week! </div>
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I can't wait to get our pictures back from our photographer!</div>
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<br />Anonymoushttp://www.blogger.com/profile/13889690849796455636noreply@blogger.com0tag:blogger.com,1999:blog-3777488037255719454.post-89021602807324040452014-05-24T22:33:00.004-05:002014-05-24T22:33:59.563-05:00Clay found his shadow!<div style="text-align: center;">
<span style="background-color: #f1c232; color: #141823; font-family: Helvetica, Arial, 'lucida grande', tahoma, verdana, arial, sans-serif; font-size: 14.399999618530273px; line-height: 15.455999374389648px;">Clay found his shadow tonight! </span></div>
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<span style="background-color: #f1c232; color: #141823; font-family: Helvetica, Arial, 'lucida grande', tahoma, verdana, arial, sans-serif; font-size: 14.399999618530273px; line-height: 15.455999374389648px;"><br /></span></div>
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<span style="background-color: #f1c232; color: #141823; font-family: Helvetica, Arial, 'lucida grande', tahoma, verdana, arial, sans-serif; font-size: 14.399999618530273px; line-height: 15.455999374389648px;">In the 2nd picture he is signing "dad". </span></div>
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<span style="background-color: #f1c232; color: #141823; font-family: Helvetica, Arial, 'lucida grande', tahoma, verdana, arial, sans-serif; font-size: 14.399999618530273px; line-height: 15.455999374389648px;"><br /></span></div>
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<span style="background-color: #f1c232; color: #141823; font-family: Helvetica, Arial, 'lucida grande', tahoma, verdana, arial, sans-serif; font-size: 14.399999618530273px; line-height: 15.455999374389648px;">I don't know if he just wanted to watch himself do cool things, if he thought the shadow was dad, or if he wanted to show dad his cool new find!? </span></div>
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<span style="background-color: #f1c232; color: #141823; font-family: Helvetica, Arial, 'lucida grande', tahoma, verdana, arial, sans-serif; font-size: 14.399999618530273px; line-height: 15.455999374389648px;"><br /></span></div>
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<span style="background-color: #f1c232; color: #141823; font-family: Helvetica, Arial, 'lucida grande', tahoma, verdana, arial, sans-serif; font-size: 14.399999618530273px; line-height: 15.455999374389648px;">Any which way, it was adorable!</span></div>
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Anonymoushttp://www.blogger.com/profile/13889690849796455636noreply@blogger.com0tag:blogger.com,1999:blog-3777488037255719454.post-41391488274164380372014-05-24T22:29:00.004-05:002014-05-24T22:29:38.894-05:00Frozen cooking class<div class="separator" style="clear: both; text-align: center;">
<iframe allowfullscreen='allowfullscreen' webkitallowfullscreen='webkitallowfullscreen' mozallowfullscreen='mozallowfullscreen' width='320' height='266' src='https://www.youtube.com/embed/4gj1WdALmAw?feature=player_embedded' frameborder='0'></iframe></div>
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I recently stumbled across a website for Kidz Cook with Joy that is located in Ralston. </div>
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Wyatt and Hazel love to help in the kitchen so I knew they would like taking a class. </div>
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When I saw they were having a Frozen themed party, I knew they would LOVE it! </div>
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...and they did. </div>
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I think Hazel's was more than love. </div>
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She was infatuated with Elsa!</div>
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<tr><td class="tr-caption" style="text-align: center;">A banana Olaf</td></tr>
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<tr><td class="tr-caption" style="text-align: center;">Princess Elsa helping with their craft.</td></tr>
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<tr><td class="tr-caption" style="text-align: center;">Such a stud!</td></tr>
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<tr><td class="tr-caption" style="text-align: center;">She didn't want to let go :) </td></tr>
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<br />Anonymoushttp://www.blogger.com/profile/13889690849796455636noreply@blogger.com0tag:blogger.com,1999:blog-3777488037255719454.post-77296647979835546782014-05-23T21:32:00.000-05:002014-05-23T21:34:11.649-05:00Childhood is not a race...<div class="separator" style="clear: both; text-align: center;">
<span style="background-color: #f1c232; line-height: 20px; text-align: start;"><span style="font-family: Helvetica Neue, Arial, Helvetica, sans-serif;">We had Clay's IFSP meeting yesterday, where we discussed all of his goals for the next 6 months with his speech, physical, and occupational therapists. </span></span></div>
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<span style="background-color: #f1c232; line-height: 20px; text-align: start;"><span style="font-family: Helvetica Neue, Arial, Helvetica, sans-serif;">I am so proud of all the goals he has met and continues to work on. </span></span></div>
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<span style="background-color: #f1c232; line-height: 20px; text-align: start;"><span style="font-family: Helvetica Neue, Arial, Helvetica, sans-serif;">One of the most important things Clay has taught me is that childhood is not a race. </span></span></div>
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<span style="background-color: #f1c232; line-height: 20px; text-align: start;"><span style="font-family: Helvetica Neue, Arial, Helvetica, sans-serif;">You can never get these moments back so it is okay to slow down, enjoy now, and not rush the future.</span></span></div>
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<span style="background-color: #f1c232;"><span style="font-family: Helvetica Neue, Arial, Helvetica, sans-serif;"><span data-reactid=".11.1:3:1:$comment10100581469403083_10100581658289553:0.0.$right.0.$left.0.0.0:$comment-body.0.0" style="line-height: 12.288000106811523px; text-align: left;"><span data-reactid=".11.1:3:1:$comment10100581469403083_10100581658289553:0.0.$right.0.$left.0.0.0:$comment-body.0.0.$end:0:$0:0">Some days, like all moms, I feel so overwhelmed with it all.</span></span></span></span></div>
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<span style="background-color: #f1c232;"><span style="font-family: Helvetica Neue, Arial, Helvetica, sans-serif;"><span data-reactid=".11.1:3:1:$comment10100581469403083_10100581658289553:0.0.$right.0.$left.0.0.0:$comment-body.0.0" style="line-height: 12.288000106811523px; text-align: left;"><span data-reactid=".11.1:3:1:$comment10100581469403083_10100581658289553:0.0.$right.0.$left.0.0.0:$comment-body.0.0.$end:0:$0:0"> Learning colors, how to ride a bike, read, write your name, etc. and I need to just remember it will all come with time and one day I will look back and wish we w</span></span><span data-reactid=".11.1:3:1:$comment10100581469403083_10100581658289553:0.0.$right.0.$left.0.0.0:$comment-body.0.3" style="line-height: 12.288000106811523px; text-align: left;"><span data-reactid=".11.1:3:1:$comment10100581469403083_10100581658289553:0.0.$right.0.$left.0.0.0:$comment-body.0.3.0"><span data-reactid=".11.1:3:1:$comment10100581469403083_10100581658289553:0.0.$right.0.$left.0.0.0:$comment-body.0.3.0.$end:0:$0:0">ere back to the time before they knew these things. </span></span></span></span></span></div>
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<span style="background-color: #f1c232;"><span style="font-family: Helvetica Neue, Arial, Helvetica, sans-serif;"><span data-reactid=".11.1:3:1:$comment10100581469403083_10100581658289553:0.0.$right.0.$left.0.0.0:$comment-body.0.3" style="line-height: 12.288000106811523px; text-align: left;"><span data-reactid=".11.1:3:1:$comment10100581469403083_10100581658289553:0.0.$right.0.$left.0.0.0:$comment-body.0.3.0"><span data-reactid=".11.1:3:1:$comment10100581469403083_10100581658289553:0.0.$right.0.$left.0.0.0:$comment-body.0.3.0.$end:0:$0:0">Clay definitely does things at HIS OWN PACE, and that has taught me so much. </span></span></span></span></span></div>
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<span style="background-color: #f1c232;"><span style="font-family: Helvetica Neue, Arial, Helvetica, sans-serif;"><span data-reactid=".11.1:3:1:$comment10100581469403083_10100581658289553:0.0.$right.0.$left.0.0.0:$comment-body.0.3" style="line-height: 12.288000106811523px; text-align: left;"><span data-reactid=".11.1:3:1:$comment10100581469403083_10100581658289553:0.0.$right.0.$left.0.0.0:$comment-body.0.3.0"><span data-reactid=".11.1:3:1:$comment10100581469403083_10100581658289553:0.0.$right.0.$left.0.0.0:$comment-body.0.3.0.$end:0:$0:0">THIS IS HIS JOURNEY and I am just here to guide to him in the right direction....and that applies to so many aspects of parenting!</span></span></span></span></span></div>
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<br />Anonymoushttp://www.blogger.com/profile/13889690849796455636noreply@blogger.com0tag:blogger.com,1999:blog-3777488037255719454.post-73021294102906165922014-05-11T21:51:00.000-05:002014-05-11T21:51:35.763-05:00A rough week for Wyatt <div class="separator" style="clear: both; text-align: center;">
Wyatt fell when he got out of the shower and hit his chin on our tile floor. It split open pretty good and I was pretty sure he needed stitches. Luckily, the family practice clinic in Valley was still open so they got him all fixed up!</div>
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He was SUPER brave and didn't cry until the numbing shots. Then we both cried. </div>
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Thank GOD they did there job and he was a super tough guy during the stitches!</div>
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A trip to Dairy Queen on the way home made everything better! ....and the big glass of wine I drank after he went to bed :)</div>
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A few days later, Wyatt had an allergy test with an allergy doctor at Boys Town. He has always had "seasonal allergy" symptoms - running nose, sneezing, water eyes, cough, etc. except his aren't seasonal - they last ALL year. To add to it, he has been breaking out in hives when we play outside and around animals.</div>
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The allergy "scratches" were nothing compared to the numbing shots; he didn't shed a tear and laid still the whole time. He is such a great patient.</div>
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I knew he had allergies but I did NOT expect him to be allergic to the ENTIRE panel. He tested positive to all 28 allergens they tested + horses....and he had a sinus infection - again.</div>
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OH. MY. GOODNESS!</div>
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We were sent home on an antibiotic, a steroid, with an EpiPen, and lots of information about exploring dietary restrictions and allergy shots. Yikes!!!!</div>
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We discovered a new treatment for allergies called sublingual immunotherapy, which is fancy for "allergy drops". It is similar to allergy shots but given in a liquid, drop form under the tongue.</div>
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This fairly new and not a lot of doctors in Omaha do it, yet. He has an appointment next week with a different allergy doctor who does do the drops so more info. on that coming soon!</div>
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This picture was seconds after the scratch test. All those red areas spread to dime + size hives within minutes. </div>
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Poor guy!!!</div>
<br />Anonymoushttp://www.blogger.com/profile/13889690849796455636noreply@blogger.com0tag:blogger.com,1999:blog-3777488037255719454.post-51710907652827861882014-05-11T21:29:00.004-05:002014-05-11T21:29:39.373-05:00Phone Dump<div style="text-align: center;">
Pictures, pictures, and more pictures! </div>
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<br />Anonymoushttp://www.blogger.com/profile/13889690849796455636noreply@blogger.com0tag:blogger.com,1999:blog-3777488037255719454.post-1715997031124916502014-05-11T21:20:00.004-05:002014-05-11T21:20:52.410-05:00Lincoln Half 2014<div class="separator" style="clear: both; text-align: center;">
Well, I pulled it off! I have to admit, I was way under trained this year. I definitely didn't log the miles I should have and hurt my ankle on my last long run prior to the race.</div>
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I was super nervous I would not be able to do it but taking a few days off, ice, and some KT tape did the trick.</div>
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I was hoping for a few minutes less on my time but beggars can't choosy, right!?</div>
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I raised $330 for <a href="http://www.researchds.org/" target="_blank">Research Down Syndrome</a>! Thanks to everyone who donated to this great cause!</div>
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<a href="https://www.crowdrise.com/leahsrun" target="_blank">https://www.crowdrise.com/leahsrun</a></div>
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The whole fam went down to Lincoln the night before the race and went to the Natural History Museum on Nebraska's campus and out to eat at the Haymarket. All was well until the hotel sleeping. Clay didn't let anyone get much sleep but we all had fun nonetheless!</div>
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This was Clay on the way home from Lincoln. I hear ya, dude!</div>
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<br />Anonymoushttp://www.blogger.com/profile/13889690849796455636noreply@blogger.com0tag:blogger.com,1999:blog-3777488037255719454.post-61229960313637228262014-05-11T21:06:00.000-05:002014-05-11T21:06:45.091-05:00Happy Mother's Day <div class="separator" style="clear: both; text-align: center;">
I am so lucky to get to call this amazing woman my mom! I don't know what I would do without her. She has taught me so much and I still have so much to learn from her. </div>
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She is my biggest cheerleader in life and my best friend.</div>
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I love you, mom!</div>
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I had such a great day with my littles and my partner in crime. Luke made me breakfast this morning and went and got me a "fancy coffee" from Scooter's. That is always a great way to start the day!</div>
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It rained this morning but we didn't let that stop our fun!</div>
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The Safari Park in Ashland has become our Mother's Day tradition so we were glad when the rain cleared up! This year we "hiked" the nature trail around the wolf area. The kids were pretty excited about their first hiking experience!</div>
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....AND we ended the night hanging out in the basement bathroom with the iPad because the tornado sirens were going off! </div>
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Clay decided Wyatt's lap was the safest spot. So stinkin' cute!</div>
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Best Mother's Day EVER!</div>
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<br />Anonymoushttp://www.blogger.com/profile/13889690849796455636noreply@blogger.com0tag:blogger.com,1999:blog-3777488037255719454.post-91069515525449835452014-04-27T14:30:00.003-05:002014-04-27T14:30:57.369-05:00Running for Research Down SyndromeI have created a fundraising page for the Lincoln Half Marathon I will be running on May 4th.<br />
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<a href="http://www.researchds.org/" target="_blank">Research Down Syndrome</a> has a great program called <a href="http://www.researchds.org/rds-runners/" target="_blank">RDS Runners</a> whose miles help raise funds for Down syndrome research.<br />
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I love their slogan, "Let's Race for the Extraordinary!"<br />
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<a href="http://www.crowdrise.com/leahsrun/fundraiser/leahjanke" target="_blank">http://www.crowdrise.com/leahsrun/fundraiser/leahjanke</a><br />
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(Pics from the June 2013 Buddy Run)</div>
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<br />Anonymoushttp://www.blogger.com/profile/13889690849796455636noreply@blogger.com0tag:blogger.com,1999:blog-3777488037255719454.post-5390379487405269982014-04-27T14:22:00.000-05:002014-04-27T14:22:16.445-05:00Research Down SyndromeI recently had the pleasure of listening to Dr. Patricia White from <a href="http://www.researchds.org/" target="_blank">Research Down Syndrome</a> present to our local Down syndrome group. I was seriously blown away! So much information! Thank goodness my mom was still up at 10PM, on my drive home, because I was so excited to share everything I had just learned! <br />
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Let me try to sum up some of the main things I learned-<br />
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1. The reason people with Down syndrome are at a greater risk for childhood Leukemia and early onset Alzheimer's disease? The precursor gene for these are found on the 21st chromosome. People with Down syndrome have 3 copies of their 21st chromosome, therefore increasing their likelihood. <br />
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2. People with Down syndrome have LESS (possibly zero) risk of developing breast cancer and colon cancer. Why? This has yet to be discovered but is something that researchers are very interested in, specifically those researching for cures for breast cancer and colon cancer.<br />
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3. In a trial including people with Down syndrome and mice engineered to mirror people with Down syndrome, every single test subject had sleep apnea. Although not all subjects showed the obvious signs, when their brain patterns where studied during the trial they ALL had sleep apnea. The correlation between untreated sleep apnea and cognitive ability is yet to be determined but we all know how important sleep is to the way our bodies and brains function.<br />
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4. Dr. White explained one of the main "malfunctions" in the way cognitive learning is affected in people with Down syndrome. Think of our brain as a long hallway with a series of doors that must open and close with precise accuracy in order for a message to get through. This accuracy of opening and closing doors malfunctions in people with Down syndrome. The doors do open and they do close but not in the timely manner they should, so not all information is processed by the brain.<br />
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5. Research Down syndrome has created a drug that regulates the way these doors open and close and puts them on the "correct" timing pattern. <br />
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6. This drug was first tested on mice who genetically resemble those with Down syndrome. The results remarkable. The mice who were unable to get through mazes prior to taking the medication, were then able to navigate their way through. Several of the mice had unsuccessfully nested with the materials provided prior to taking the medication and successfully nested after taking the medication. CRA-ZEE!<br />
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7. The drug is now being tested on individuals with Down syndrome in several drug trials around the world.<br />
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8. There are 3 phases of a drug trial before it reaches FDA approval and this drug is currently in phase 2.<br />
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9. The FDA can take YEARS and YEARS to approve a new drug but Dr. White is hopeful that this drug *might* have a speedier process because it is the first drug to improve cognition in people with Down syndrome. First drugs often get approved more quickly because of "imminent need".<br />
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I was SOOO blown away by all this information. It makes me so hopeful for what is in store for Clay's future! If there is a way to make his learning easier, improve his self help skills, and broaden the possibilities for his future in the work force and living independently - that is a no brainer to me! ...and obviously, one day Clay will be able to make this decision for himself.Anonymoushttp://www.blogger.com/profile/13889690849796455636noreply@blogger.com0tag:blogger.com,1999:blog-3777488037255719454.post-68563180871559940582014-04-27T08:20:00.002-05:002014-04-27T08:20:57.357-05:00DC West Soccer<div class="separator" style="clear: both; text-align: center;">
Wyatt is playing soccer this spring through DC West, our local school district. So far, he is loving it! The games are played right near the school, which is about 5 minutes from our house. Awesome! Nothing is 5 minutes from our house.</div>
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Several kids from Wyatt's preschool class are playing this year so Wyatt has been a lot less shy and more aggressive than he has been in past years when playing through the YMCA. </div>
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Go Wyatt!</div>
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Aunt Molly and Uncle Pat were in town to cheer Wyatt on for his first game!</div>
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Anonymoushttp://www.blogger.com/profile/13889690849796455636noreply@blogger.com0tag:blogger.com,1999:blog-3777488037255719454.post-7827081857948730482014-04-26T21:08:00.002-05:002014-04-26T21:08:27.366-05:00Clay's First Haircut! <div class="separator" style="clear: both; text-align: center;">
Thanks to the iPad, Hazel's help, and M&M's - Clay survived his first haircut!</div>
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I should have taken before pics. </div>
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There use to be a ringlets, that *slightly* resembled a mullet back there! </div>
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<br />Anonymoushttp://www.blogger.com/profile/13889690849796455636noreply@blogger.com0tag:blogger.com,1999:blog-3777488037255719454.post-47729485603724576342014-04-26T20:52:00.006-05:002014-04-26T20:52:57.254-05:00Working on the Walking Thing!<div class="separator" style="clear: both; text-align: center;">
About a month ago, while we were playing outside, Clay stood up on his own for the first time. This is HUGE people! Clay has been pulling up on furniture (or pretty much anything he can find) to stand and cruising along things since last summer but has never stood on his own. I cried. Seriously. He works so hard and to see him be so proud is something I could never explain in words.</div>
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So fast forward to now (a month later), Clay is standing on his own AND taking steps!!!! Look out world, Clay is on the move!</div>
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<br />Anonymoushttp://www.blogger.com/profile/13889690849796455636noreply@blogger.com0tag:blogger.com,1999:blog-3777488037255719454.post-18915446514602663482014-04-20T07:56:00.000-05:002014-04-27T07:57:01.815-05:00Happy Easter!<div class="separator" style="clear: both; text-align: center;">
We kicked off our Easter celebrations with a Easter egg hunt with our Down syndrome group. </div>
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Aunt Molly and Pat were in town and got to join in the fun!</div>
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Um, how cute are these!? Wyatt and I made these to bring to a friend's house for an egg decorating party. </div>
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Not gonna lie; I am pretty proud of them!</div>
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Easter Morning Egg Hunt at our house</div>
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Celebrating Easter at Grandma & Papa Turpen's house</div>
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<br />Anonymoushttp://www.blogger.com/profile/13889690849796455636noreply@blogger.com0tag:blogger.com,1999:blog-3777488037255719454.post-87326876305572907102014-03-21T20:30:00.000-05:002014-04-26T20:30:40.589-05:00Kindergarten Round Up<div class="separator" style="clear: both; text-align: center;">
<a href="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEiIcSZc1bh61-IrzTw4D8eg-NNgu1hyphenhyphen726f42RBWh98cN7rxXc-mTZyYFVxfd30RM-zIKIAJzuFWc1ry4ttl9q3v_yz1TJcP0luJZPlA29LNM-1g9DKfkFm7Va2TKKa6vd7_FRb5r1R4shs/s1600/IMG_0226.jpg" imageanchor="1" style="margin-left: 1em; margin-right: 1em;"><img border="0" src="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEiIcSZc1bh61-IrzTw4D8eg-NNgu1hyphenhyphen726f42RBWh98cN7rxXc-mTZyYFVxfd30RM-zIKIAJzuFWc1ry4ttl9q3v_yz1TJcP0luJZPlA29LNM-1g9DKfkFm7Va2TKKa6vd7_FRb5r1R4shs/s1600/IMG_0226.jpg" height="400" width="400" /></a></div>
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Can you believe Wyatt will be a Kindergartener in a few months!? Me neither! He loved Kindergarten round up and had fun checking out the rooms, meeting the teachers, and was a social butterfly with the other students! This boy is READY....his mama is another story!</div>
<br />Anonymoushttp://www.blogger.com/profile/13889690849796455636noreply@blogger.com0tag:blogger.com,1999:blog-3777488037255719454.post-46895909664538829362014-03-21T20:25:00.000-05:002014-04-26T20:26:03.755-05:00World Down Syndrome Day!Okay, so I realize I am WAAAYYYY behind but I am just going to carry on like I am not. These next few posts will probably be short and sweet or they will NEVER happen!<br />
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March 21st is <a href="http://www.worlddownsyndromeday.org/" target="_blank">World Down Syndrome Day</a>. 3/21 is significant because people with Down syndrome are born with 3 copies of their 21st chromosome.<br />
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We had a fun, FULL day and rocked our Down syndrome awareness shirts all day. <br />
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Clay had his annual cardiology appointment at Children's Hospital and everything check out great! Clay sat through the 30 minute echocardiogram like a champ and his doctor, Dr. Danford, was very pleased with the way everything looks. We don't go back for 18 months!</div>
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Clay's shirt says "Ha ha! I have an extra chromosome!"</div>
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Later in the day, I ran 3.21 miles to raise money for an organization called <a href="http://www.researchds.org/rds-runners/" target="_blank">Research Down Syndrome</a> - more about that in a later post!<br />
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Wyatt and Hazel helped me make these 321 cookies for (3/21). They might not understand Down syndrome but they understand cookies!!!!</div>
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I brought the cookies that my little people didn't eat to a get together with my Down syndrome mom's group later that night. We watched <a href="http://www.monicaanddavid.com/" target="_blank">Monica & David</a>, a documentary on a married couple with Down syndrome. I would highly recommend it to anyone! I believe you can find it on Netflix.</div>
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We had a great day celebrating Clay and all those rockin' that extra chromosome! </div>
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<br />Anonymoushttp://www.blogger.com/profile/13889690849796455636noreply@blogger.com0tag:blogger.com,1999:blog-3777488037255719454.post-30110252658558284642014-03-05T22:01:00.000-06:002014-03-05T22:01:25.932-06:00Spread the Word to End the Word<div class="separator" style="clear: both; text-align: center;">
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Today is the annual day to raise awareness for ending of the use of the words retard and retarded in people's derogatory language. </div>
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You can read more about the campaign and take your pledge today at <a href="http://www.r-word.org/" target="_blank">http://www.r-word.org/</a>.</div>
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This is a great article by actor John McGinley, who has a son with Down syndrome. If you don't have time to read it, this about sums it up "Words hurt. They do. They always have. And they always will."</div>
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<a href="http://www.huffingtonpost.com/john-c-mcginley/what-really-happens-when-you-use-the-r-word_b_4896444.html" target="_blank">http://www.huffingtonpost.com/john-c-mcginley/what-really-happens-when-you-use-the-r-word_b_4896444.html</a></div>
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<br />Anonymoushttp://www.blogger.com/profile/13889690849796455636noreply@blogger.com0tag:blogger.com,1999:blog-3777488037255719454.post-34223856549908947262014-02-26T17:37:00.000-06:002014-02-26T17:37:10.114-06:00Wyatt is a Five Year Old Boy!<div style="text-align: center;">
FIVE!!!!!....how can that even be true!? This moment seems like it was just yesterday. </div>
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Wyatt's birthday has been a big deal coming. He is very into numbers and age lately. </div>
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Wyatt was thrilled when he turned 4.5 and was no longer "just 4". </div>
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He reads the size tags on his clothes and several questions followed if he was not wearing "4 year old clothes"....he is very excited to wear clothes "for a five year old boy!" </div>
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Wyatt is also very concerned for Clay's safety and alerts us of ALL the toys we have that say for ages 3+. Clearly he thinks we are dropping the ball on this one. </div>
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One thing he is not looking forward to is eating 5 bites of an unwanted food, instead of just 4 bites. </div>
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Well, there was no need to worry about unwanted food on his birthday! Milk with a sprinkle rim, donuts, cake - bring it on!</div>
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I was lucky enough to eat breakfast at Wyatt's school with him. This is his "friend" Johanna. </div>
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We hear A LOT about her ;) </div>
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Our attempt at a family photo before heading out the door to a birthday dinner at Big Fred's with Grandma Nancy, Aunt Jill, and Aunt Esther!</div>
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Our cool dude wanted to have a party with his friends this year (how grown up is that!?!?!) so we invited his preschool class to Bounce U (a bounce house, party place). </div>
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A good time was had by all!</div>
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You know how we do it. </div>
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One birthday celebration? </div>
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Nope. </div>
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Two birthday celebrations? </div>
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Nope. </div>
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Three birthday celebrations!? </div>
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Why not!?!?! </div>
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Grandma Sue and Papa Jim came down a few days before Wyatt's birthday to kick off the birthday parties. We were all excited to spend the day with them!</div>
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Happy Birthday, Wyatt! We love you all the way to Africa, then to the moon, and back!</div>
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Anonymoushttp://www.blogger.com/profile/13889690849796455636noreply@blogger.com0tag:blogger.com,1999:blog-3777488037255719454.post-12743095340008565242014-02-06T09:10:00.001-06:002014-02-06T09:10:29.773-06:00Goodbye tonsils and adenoids!On Tuesday, Hazel had an intracapsular tonsillectomy and her adenoids removed. Our pediatrician has been concerned with the size of her tonsils for some time. Their size combined with her snoring, sleep apnea, and trouble swallowing solid foods meant it was time for a visit to the ear, nose, and throat doctor. <br />
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We have been at Dr. Allen's office a lot lately with Clay's latest tube surgery so it was no biggie for Hazel. She kept making comments about what a big girl she is and how she was doing such a good job and not crying. She was right!<br />
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Dr. Allen also thought the tonsils needed to come out and was concerned with the amount of fluid in Hazel's ears (which led to failed hearing tests) and thought that tubes might be necessary. She gave me the option of doing a partial (intracapsular) tonsillectomy, where they remove 90-95% of the tonsils leaving only a small amount of tissue along the wall of the throat. This usually makes for a MUCH easier recovery, less pain, and less chance of bleeding. Because Hazel does not have a history of sore throats and size being her only issue with her tonsils, it seemed like a great option. In most cases where tonsils need to be removed, the adenoids also need to come out and that was true for Hazel as well.<br />
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The day of surgery, Hazel made a grand entrance at Boys Town wheeling her bee suitcase filled with her toys and blanket. Seriously, all the nurses came out to admire her. She was in heaven.<br />
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The hospital issue pajamas were a big hit. She was as excited about them as she would have been about a shimmery princess dress. Bless her heart!<br />
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Daddy came to join us after he dropped Wyatt and Clay off at school and Hazel was super excited for some Daddy snuggles. She didn't know what was about to happen but she knew something was up!</div>
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When the anesthesiologist came to get Hazel, she was so brave. No tears. She just waved goodbye as they pushed her down the hall. Seriously, I cried and she did not. One tough cookie. </div>
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Dr. Allen came in about 45 minutes later and said that everything went great. Her adenoids looked worse than her tonsils so she thinks they were responsible for the fluid in her ears and did not put tubes in (yay!).</div>
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The nurse brought Hazel back to us, from recovery, about an hour after that. She was pretty out of it but was not upset. Within an hour or so, she was talking, drinking juice, and loving ALL the jello!</div>
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We were able to go home about 4 hours after Hazel got out of recovery. She was a little bummed to leave. Snuggles, no siblings, cartoons, all the jello a girl could want - of course she didn't want to leave!</div>
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We are now 3 days out from surgery and Hazel is recovering like a champ! She is staying hydrated with lots of water and juice, sleeping well, and does not seem to be in any pain. Her throat is dry/sore when she first wakes up but after a dose of Tylenol and getting some fluids in her, she is good to go.</div>
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We are so proud of our big girl and are hopeful for better eating and sleeping habits to come!</div>
<br />Anonymoushttp://www.blogger.com/profile/13889690849796455636noreply@blogger.com0tag:blogger.com,1999:blog-3777488037255719454.post-16208496521129148332014-01-14T20:44:00.001-06:002014-01-14T20:44:55.887-06:00Baby Fever<div class="separator" style="clear: both; text-align: center;">
Don't worry, it isn't me or Luke. </div>
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It is Clay. </div>
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Clay has been quite the baby lover lately. </div>
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It is the cutest thing EVER. </div>
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He will sign baby (rock your arms back and forth like you are rocking a baby) and then go feed and kiss them.</div>
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He is such a lover. Now a real baby might be a different story ;) </div>
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<tr><td style="text-align: center;"><a href="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEhPJ4o1GNdSlW3EP010D3ArUGm9RpxfmqvzaCAb0ZYuXN0j2AGXEvtbgZ0c_UwjA2Ru-SldrfZJdruQ4Hjvly0_YPj-RJUTB2zG2r61wsxS1ZXYXZqj15gsBY_VX-0ZK6uvn-V4rOTLgdfV/s1600/IMG_9250.jpg" imageanchor="1" style="margin-left: auto; margin-right: auto;"><img border="0" height="400" src="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEhPJ4o1GNdSlW3EP010D3ArUGm9RpxfmqvzaCAb0ZYuXN0j2AGXEvtbgZ0c_UwjA2Ru-SldrfZJdruQ4Hjvly0_YPj-RJUTB2zG2r61wsxS1ZXYXZqj15gsBY_VX-0ZK6uvn-V4rOTLgdfV/s400/IMG_9250.jpg" width="400" /></a></td></tr>
<tr><td class="tr-caption" style="text-align: center;">Baby kisses</td></tr>
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<tr><td style="text-align: center;"><a href="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEgC9vJIR6lfyvwyKma1jW-YuifCvGMhvV-iAurslf7Fbu3ExYBKiRZq5S13d7QovFyIWB0lnI7FBPkGvI316P6_2r2Zg_s3F-gRgO_YcRdukh1m1XjdVEhW0LOiFQ8lri8ZWPzg7xmbMsoE/s1600/IMG_9367.JPG" imageanchor="1" style="margin-left: auto; margin-right: auto;"><img border="0" height="400" src="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEgC9vJIR6lfyvwyKma1jW-YuifCvGMhvV-iAurslf7Fbu3ExYBKiRZq5S13d7QovFyIWB0lnI7FBPkGvI316P6_2r2Zg_s3F-gRgO_YcRdukh1m1XjdVEhW0LOiFQ8lri8ZWPzg7xmbMsoE/s400/IMG_9367.JPG" width="400" /></a></td></tr>
<tr><td class="tr-caption" style="text-align: center;">He was making a sucky face/noise in case baby didn't know what to do. </td></tr>
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<tr><td style="text-align: center;"><a href="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEjb8X8po8sSr259kUMMcL0wOxQo1kw25noly1cre258Cn7syBaJvNjoTVIGpzUPHqc7kLQG2i2HTJcBa4q3gdS_wbafuheK2CW25YjTo2jROpH2mGBMp4dEGsGJ831fQYlWjf2dhfLbcte-/s1600/IMG_9373.JPG" imageanchor="1" style="margin-left: auto; margin-right: auto;"><img border="0" height="400" src="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEjb8X8po8sSr259kUMMcL0wOxQo1kw25noly1cre258Cn7syBaJvNjoTVIGpzUPHqc7kLQG2i2HTJcBa4q3gdS_wbafuheK2CW25YjTo2jROpH2mGBMp4dEGsGJ831fQYlWjf2dhfLbcte-/s400/IMG_9373.JPG" width="400" /></a></td></tr>
<tr><td class="tr-caption" style="text-align: center;">Not a baby but he also loves our Little People Princesses. He carries them around all day.</td></tr>
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<tr><td class="tr-caption" style="text-align: center;">Taking care of baby in the bath, too!</td></tr>
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<br />Anonymoushttp://www.blogger.com/profile/13889690849796455636noreply@blogger.com0tag:blogger.com,1999:blog-3777488037255719454.post-45180488235473844372014-01-07T21:44:00.002-06:002014-01-07T21:44:52.772-06:00Tubes - Round TwoClay had his tubes redone today at Boys Town National Research Hospital. He first had them put in last November due to several failed hearing tests and constant fluid in his ears. His first procedure went well and lucky for us, today was no different.<br />
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We learned that his right tube was out about 2 months ago when he got an ear infection. We made a follow up visit with our ENT, Dr. Allen, and she confirmed the tube was out and needed to be replaced. The left tube still appeared to be intact but Clay failed the hearing test in BOTH ears. This was cause for some concern. He had previously passed his hearing tests after having the tubes put in.<br />
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<span style="background-color: #f1c232; font-family: Times, Times New Roman, serif;">Dr. Allen suggested we have an Auditory Brainstem Response Test (ABR) to determine whether or not Clay was experiencing hearing loss due to fluid (which is easily fixed with tubes) or if hearing aids would be a necessary next step. <span style="line-height: 18px;">The ABR is performed by pasting electrodes on the head and recording brain wave activity in response to sound. The person being tested rests quietly or sleeps while the test is performed.</span></span><br />
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She also wanted to repeat the scope of his throat that she did last time to check on his Tracheomalacia (low muscle tone in his trachea). This has caused Clay little problems so far but is the reason he sounds "phlemy" after eating or drinking and can lead to respiratory issues if not kept under control.<br />
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His surgery was at 9:00 am this morning and we had to be there at 7:30. My biggest concern was that he could not eat or drink before surgery. Clay loves to eat. Clay loves to eat on a schedule. That schedule includes breakfast being about 4 minutes after he wakes up. In fact, Clay usually signs "more eat" as I change his morning diaper. Much to my surprise, me having to wake him up made him pretty out of it for the majority of the morning and he didn't seem too upset about not eating. The iPad and a new toy kept him busy with the exception of a few "more eat" signs throughout the morning.<br />
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The tubes and scope only took Dr. Allen about 30 minutes and she reported back that she had no problems putting the new, right tube in and the left one looked good so she left it alone. </div>
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The scope showed pretty much the same thing as a year ago. There is flattening or narrowing of his trachea down low, closer to his airways but she is confident that as he grows it will continue to open and round out as it should be.</div>
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The ABR (hearing test) took about an hour and we were very relieved to hear from audiology that Clay passed in both ears!</div>
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We are so proud of Clay. He is such a trooper and was all smiles tonight!</div>
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Anonymoushttp://www.blogger.com/profile/13889690849796455636noreply@blogger.com0tag:blogger.com,1999:blog-3777488037255719454.post-84053450959252547412014-01-06T14:38:00.000-06:002014-01-06T14:49:56.094-06:00Thanks for the memories 2013!<div style="text-align: center;">
2013 was a great year full of laughter, friends, family, and wonderful memories. I end this year feeling so very blessed for the friends and family in my life.</div>
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I can't wait to see what 2014 has in store for us!<br />
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Here are some of our favorite memories from 2013!<br />
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Anonymoushttp://www.blogger.com/profile/13889690849796455636noreply@blogger.com0tag:blogger.com,1999:blog-3777488037255719454.post-54679184461615782192013-12-31T14:10:00.000-06:002014-01-06T14:39:57.822-06:00New Year's Eve <div class="separator" style="clear: both; text-align: center;">
Luke and I decided to stay in for New Year's Eve this year. We had such a fun but busy and <i>long </i>Christmas, it was nice to just have a few "quite" days at home.</div>
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We played games, had mommy and me cocktails, watched a movie, and wore our party hats. </div>
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It was perfect! </div>
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Luke and I felt like a million bucks the next day (compared to previous years...) but the kids were another story. Thank goodness partying until almost 10 is a once a year event!</div>
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<tr><td style="text-align: center;"><a href="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEjpTKxoIEcB81WD9YA3lMG2Faz4xSUI0zKER0-PFuqa5QqVbJt65YjJqzFhOb0oISfbJGO0twPlOxOTQuWQg5V9Kt02kO3_grW8htTxrMrcEQepojkq22PV3jYDL4eb2YnIbuYpVa7LuDo6/s1600/IMG_9182.JPG" imageanchor="1" style="margin-left: auto; margin-right: auto;"><img border="0" src="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEjpTKxoIEcB81WD9YA3lMG2Faz4xSUI0zKER0-PFuqa5QqVbJt65YjJqzFhOb0oISfbJGO0twPlOxOTQuWQg5V9Kt02kO3_grW8htTxrMrcEQepojkq22PV3jYDL4eb2YnIbuYpVa7LuDo6/s320/IMG_9182.JPG" height="400" width="400" /></a></td></tr>
<tr><td class="tr-caption" style="text-align: center;">Hide n seek</td></tr>
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<tr><td style="text-align: center;"><a href="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEgNSUPEsUfqe_SC7Ft05pIKsn5u3uMhIID28XYE-qxetYhwqR2tp46D0Rjutp3ksG1tTbM-ZokT20bLDuuoK1ETsUZJB3c48zVoyE3GDVcHyQoKOiZMJWUY6HOlvy5HMLH0vVUoRZB_g_hu/s1600/IMG_9194.jpg" imageanchor="1" style="margin-left: auto; margin-right: auto;"><img border="0" src="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEgNSUPEsUfqe_SC7Ft05pIKsn5u3uMhIID28XYE-qxetYhwqR2tp46D0Rjutp3ksG1tTbM-ZokT20bLDuuoK1ETsUZJB3c48zVoyE3GDVcHyQoKOiZMJWUY6HOlvy5HMLH0vVUoRZB_g_hu/s320/IMG_9194.jpg" height="400" width="300" /></a></td></tr>
<tr><td class="tr-caption" style="text-align: center;">Zingo!</td></tr>
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<tr><td style="text-align: center;"><a href="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEj231NXQAPQqtmhiOhCkTYs2ke0vzHM8Yvv4o42DGzpYbmmIy7bGHCyWY-ptOVIpC36T5ao-qEjFM_zOnNN3IjOyw64S1hYDQlX06oRdSJhkz36h3ak9RxA8WGR7zKNfRt8JAcjeL2-pybB/s1600/IMG_9190.JPG" imageanchor="1" style="margin-left: auto; margin-right: auto;"><img border="0" src="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEj231NXQAPQqtmhiOhCkTYs2ke0vzHM8Yvv4o42DGzpYbmmIy7bGHCyWY-ptOVIpC36T5ao-qEjFM_zOnNN3IjOyw64S1hYDQlX06oRdSJhkz36h3ak9RxA8WGR7zKNfRt8JAcjeL2-pybB/s320/IMG_9190.JPG" height="400" width="400" /></a></td></tr>
<tr><td class="tr-caption" style="text-align: center;">Mommy and me cocktails!<br />
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New Year's Eve isn't complete without party hats, right!? Clay wasn't so convinced....</div>
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Happy 2014!!!!!!!!!</div>
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<br />Anonymoushttp://www.blogger.com/profile/13889690849796455636noreply@blogger.com0tag:blogger.com,1999:blog-3777488037255719454.post-37099402460577041332013-12-28T13:59:00.000-06:002014-01-06T14:40:25.310-06:00Turpen Christmas<div style="text-align: center;">
Christmas at Grandma and Papa Turpen's house is always so much fun with ALL the kids! </div>
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Wyatt, Hazel, and Clay love to get to play with their cousins. Grandma still has a lot of Luke and Jill's old toys from when they were little and the kids have a blast playing with all of them.</div>
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Look at this crazy group of cousins!</div>
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Cousin conga line!</div>
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Clay and Aunt Amy playing a game of toss the wrapping paper ;)</div>
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New books!</div>
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Sarah and Clay-Clay</div>
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Clay and Bryce had to rest after opening ALL those presents!</div>
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Oh boys and their wrestling....</div>
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Hazel got new undies!</div>
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Tired girl ;)</div>
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Group shot!</div>
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A game of "telephone"</div>
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